As-Needed Meds

Why do doctors hesitate to give "as needed" meds?  Do they think we will over use them?

Our daughter can become very irritated and agitated and angry and mean until she rages verablly if not violently.  We have never been given an as-needed med to use at times like that.  She also suffers from bad insomnia.  We are not even given a med to help with sleep as needed.  We will ask AGAIN tomorrow.  I realize that some of them can backfire, as she has done bad on klonopin, tranxene, vistaril, and a host of others.  But I would like to keep trying!

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Pilgrim, dd 20 , BP, PDD, PTSD; risperdal, and other meds being trialed.

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I am sorry that some of those meds you listed have not worked. Did they give her an opposite affect?

My dd pdoc has only given us Thorazine prn when my dd was out of control over the summer. We only have had to give it to her a few times. But we only used it when she was tirating up on her other meds and we were trying to keep her out of the phos. She was very irrational and so violent. So that did help her for those episodes until the other meds got to theraputic level. Having said that, We have been with this pdoc for over about 2 yrs. We have built a strong realtionship with her. I do not think she would have done that if we were new there.

Has she ever been on any MS? Also, do you think that the irratability is fueled by anxiety. I know for my dd that is the case.

I am hoping that you will find something for her soon.

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Angelique
Co-mod Very Young 3/ w/ Janice, Mmsun, and Erica

(Me) Angelique 33- BP,Anxiety..Lamictal, Klonopin
(DH) Craig 40- Nothing???
(DD) Ariana 6yr old- BP,Tic Syndrome,Gad,Sensory processing Disorder, Adhd, and Ocd. Medicines: Lamotrigine, Serequel, Kapvay, Melatonin, and Thorazine ( as needed ). Hoping this is the right med mix for now???
(DS) Christopher 4yr old- No problems yet????

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Still nothing for as needed.  Our daughter can also rage violently.  Not doing that at the moment.  Yes, I do believe her irritability is fueled by anxiety.

And yes, alot of the meds have the opposite effect on her.  They gave her vistaril for sleep.  Doubt if it helps.  We'll see.  I know I have to stick with this

pdoc so that she gets to know us and works well with us.  

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Pilgrim, dd 21 , BP, PDD, PTSD;going through mixed up med trials, currently invega and lithium

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OMG--This is not the thread I was expecting.  I figured everyone would be talking about the as-needed meds they already have and which one is most beneficial, etc.  Instead, I find you are in the same boat as us!  I don't understand either why it is so hard to get an as needed med.    You would think it would be more beneficial for the child to sleep rather than to live with the guilt and hurt of harming their family.  I have actually had my daughter ask me, why can't I take anything when I'm like that to help me stop!  Instead we are stuck trying to wedge a slow-acting benadryl into her while she is in crisis restraint (we are trained in crisis restraint).

Good luck with the Vistiryl.  We did not have a whole lot of luck with it.  It worked all right but honestly I think Benadryl worked better...

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Jennie (37) depression treated effectively with lexapro
Husband (58)
daughter Alison (14)
Bipolar I with episodes of psychosis; Oppositional Defiant Disorder
lithium, depakote, zyprexa, zoloft

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Got vistaril, and it gave her a night of sleep last night.  Still won't give anti-anxiety for use during the day time as needed.  In the past, what works for sleep at first wears off soon.  Hope that is not the case.

Increased her invega and supposing that is supposed to help stabilize her so she can eventually sleep?

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Pilgrim, dd 20 , BP, PDD, PTSD; risperdal, and other meds being trialed.

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My kids had prn medications. In fact, the psychiatrist gave us TWO different ones for my younger daughter, trusting us to NOT give them simultaneously. That danger is one reason they do not like to prescribe it. She had Xanax for regular anxiety, and even to be used prophylactically before minor procedures, and when she was older, studying for exams. She had Lorazepam as the "big gun" for the episodes of severe agitation, psychosis, or her "fits."

The older one had hydroxyzine for the anxiety and agitation, which did not work nearly as well for her as the the lorazepam which I did try on her, but the pdoc would NOT prescribe for her. Difference? She was very unstable and he probably worried she'd need it frequently. My younger daughter was more in the psychotic realm but he prescribed the two as I said, when she was more level. The lorazepam, he prescribed early on, and I am very grateful.  It does seem rather random.

When my younger daughter needed the lorazepam more frequently, he tried to switch her to a non-prn benzodiazapine, Klonopin (clonazapem) but she had a paradoxical reaction to it.

Other prns they have used is OTC, Hylands Calm, Hyland's Insomnia, and some use Bach's "Rescue Remedy." Later they used long-term help for insomnia (non-prescription).

My older daughter had  severe insomnia after getting tradive dyskinesia from the antipsychotics, she was on a prescription medication (not any more). The problem with that is they can build up tolerance and it can be hell getting off of. It messed with her blood sugar and made her mornings very sluggish. There is no way she could have done something like go to school in the mornings. She was also an adult by then.

--Jeanie aka "Naomi"
It's Not Mental-The book
Older dd: formerly(?) teen-onset bipolar (morphed into ultradian cycling): "Recovered" after over 13 years - stable off psych meds almost two years. Now fine on just diet changes and higher thyroid levels (after healing - addressing gut issues/Candidal overgrowth while using EMPowerPlus and other supplements). She added a little EMpowerPlus back on as a multivitamin simply because she feels better on it - gets sick less often.
Younger dd: formerly(?) Childhood-onset schizoaffective, TS, OCD, anxiety, PTSD, migraines. After over 15 years, is now "recovered" for almost 5 years after treating endocrine issues, food sensitivities, gut issues, sleep issues, nutritional/mitochondrial needs.

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They gave P a meltaway risperdal for when he starts his "fits/rages", its hard to get into him but once it hits his tongue, harder for him to get it back out.  They also just prescribed serquoel at bedtime to help with sleep as a PRN too. He'll fall asleep but up about every hour & up for good around 3 am. One night of them & he slept all night.  We'll see how it keeps going.

Sue-Mother of P- 11 yr old son bipolar mixed & ADHD, lamictal moving up to 150 mg, risperdone .5mg, 3x's a day, serqueol & meltaways as needed.
Have tried stattera, adderall xr, concentra, clonidine, intuniv, risperdal, trilepta, vyvanse, lithiuml..sure I missed a few.
1 year old full of energy daughter
expecting child # 3 in July
married to supporting husband but getting sick of it....
Oregon

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We have always used Ativan and given it sub-lingually.  It dissolves quickly and works pretty fast.

--

Brenda,51, TBMF Parent to Parent Volunteer
Mom to A, 17, BP, Tourette's, OCD, ADHD: Eskalith CR, Lamictal, Cytomel, Allegra
E, 15 1/2, BP,AS: Seroquel, Eskalith CR, inositol, Buspar
B, 14 & H, 11
Married 18 years to DH, 50

FROM TBMF: Do not start, stop, or change medications or other treatments for yourself or your child based on what you read on this Website or elsewhere on the Internet. Information presented here should not replace the considered judgement of a doctor who knows you or your child.

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My son has Clonidine for his PRN.  He has not needed it yet though, thankfully.  I don't really like the idea of giving it to him. In the past he's been on Clonidine in the daytime and it made him too tired.  I guess if he has a really bad day where he is raging a lot, sleeping would not be too bad lol.  Risperdal Melt-tabs seem like a very common one that I hear a lot of people using. --

Seekingsunshine76 from MA
Email: seekingsunshine76@yahoo.com
Co-Mod Very Young 3 with Mmsun, Erica and Angelique
Co-Mod Very Young 2 with Mmsun and Erica
Co-Mod Support 3 with Ruth, Carolyn and Cindy
Co-Mod (Temp) Support 7 with Kaia, Jane, Becky and Joan
Chat Mod

Mom to:
"Honeybunches" (9 y.o) DX: PDD-NOS, BP, SPD, ADHD, GAD, NLD, Receptive-Expressive Language Disorder, delayed but making steady progress. MEDS: Abilify 5 mg 2x day, Tenex 1 mg 3x day, Lithium 300 am/pm, Clonidine .2 mg, Cogentin .5 mg 2x day. SCHOOL: 3rd grade Substantially separate Classroom, IEP, Speech, PT, OT, Counseling, Social Skills group, 1:1 aid, safety plan, BIP; ESY services; In counseling and has a therapeutic mentor.

"Shnooks" 17 y.o stepson. Currently in BTR under DCF custody... DH & I got full sole custody in 2004. DX: BP, CD, ODD, PTSD, ADHD; CHINS in DCF custody; BTR Placement; probation until 18. Current meds: Loratidine, Claritin, Adderall, Zyprexa, Trileptal, Trazadone and Zoloft; WILL NOT BE COMING BACK HOME.

Angel: age 15; No diagnoses; Signs of depression; substance abuse;
Princess: age 12; No diagnoses; in counseling

Blog: Wonders in the Night http://www.wondersinthenight2.blogspot.com which is about raising 2 boys with alphabet soup and being a Vegan.

"And when it rains on your parade, look up rather than down. Without the rain there would be no rainbow." Jerry Chin
"Sunshine is my quest". ~Winston Churchill

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OUr dd just started on trileptal, but her bp is just starting to show its true colors and she is like a mini minefield! we were originally on abilify 2mg for irritability and tantrums with a good effect initially, we took her off to start the moodstabilizer from scratch... Pdoc  says we may need to add it back but wants to do 1 at a time and suggested we give her 1mg ability if we sense her escalating. Today she is a yo yo hyper then swearing then hitting, I lost count how many times she switched in 2hrs,  and i can see a full meltdown brewing so I gave her 1 and she took it reluctantly, I hope is prevents the 2 hr rage/meltdown, if nothing else hopefully it will help her sleep, I,ll post again if it works shell

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Shell 37, registered nurse. No issues
DH- no issues, trying to deal with DD diagnosis
DS 15- smart happy well adjusted Teenager
DS 12- happy normal kid, sensitive to his sisters outbursts
DD 9- Looks like Mood disorder NOS, chronic irritability- was on Abilify 2mg then Tofranil (that was a misteke and led to this rapid cycling! OOPS) Just starting Trileptal this week 150 mg after school

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OUr dd just started on trileptal, but her bp is just starting to show its true colors and she is like a mini minefield! we were originally on abilify 2mg for irritability and tantrums with a good effect initially, we took her off to start the moodstabilizer from scratch... Pdoc  says we may need to add it back but wants to do 1 at a time and suggested we give her 1mg ability if we sense her escalating. Today she is a yo yo hyper then swearing then hitting, I lost count how many times she switched in 2hrs,  and i can see a full meltdown brewing so I gave her 1 and she took it reluctantly, I hope is prevents the 2 hr rage/meltdown, if nothing else hopefully it will help her sleep, I,ll post again if it works shell

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Shell 37, registered nurse. No issues
DH- no issues, trying to deal with DD diagnosis
DS 15- smart happy well adjusted Teenager
DS 12- happy normal kid, sensitive to his sisters outbursts
DD 9- Looks like Mood disorder NOS, chronic irritability- was on Abilify 2mg then Tofranil (that was a misteke and led to this rapid cycling! OOPS) Just starting Trileptal this week 150 mg after school

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question...is there a difference between meltaway risperdal you talk about and regular risperdal? 

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jackie g

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Yes, the melt-tab Risperdal is fast acting and regular Risperdal takes longer to act and, I believe, stays in the system longer.

Kathy

DS, DX: BP1-Mixed w/psychotic episodes
Current Meds: Lamictal 200 mg, Lithobid 900 mg, Risperdal 3.5 mg, Tenex 1/2 mg, Time Release Melatonin
Co-mod Very Young w/Laura, Ginny, Amber and Angi
Co-mod Adoption w/Chrisa
Co-mod Support 12 w/Heather

“The school’s #1 priority is educating my son. MY #1 priority is keeping him alive. My #1 priority is more important than theirs.”
" Our anxiety does not empty tomorrow of it's sorrows, but only empties today of it's strengths."